COMMUNITY RESOURCES The bleeding disorders community has a wide range of resources available.  Listed below are just a few.  Providing these links does not imply either endorsement or support by AHF for the views and opinions expressed, or of products advertised or discussed on the sites. Rather, we hope to provide access to information and support available on the Internet for persons with hemophilia and related bleeding disorders and their families, as well as health care professionals. AHF is not responsible for the information provided by these sites. Questions related to your health are best answered in consultation with your physician. International and National Organizations Local/Community Organizations US Government Resources   Publications and Information Services Pharmaceutical Companies   INTERNATIONAL AND NATIONAL ORGANIZATION LINKS   ·        National Center for Biotechnology Search Engine - Entrez: ·        World Health Organization – WHO ·        World Federation of Hemophilia - WFH ·        Product Withdrawal Notification - Patient Notification  System  ·        National Organization for Rare Diseases - NORD ·        American Association of Blood Banks - AABB ·        Plasma Protein Therapeutics Association - PPTA ·        The National Hemophilia Foundation - NHF ·        American Society of Hematology - ASH ·        Shemophilia.org - Shemophilia.org ·        Committee of Ten Thousand  - 1-202-543-0988 ·        The Hemophilia Federation – www.hemophiliafed.org ·        American Liver Foundation at ALF ·        Project Inform – Project Inform         Kelley Communications - Kelley Com LOCAL/COMMUNITY ORGANIZATION LINKS   ·        Hemophilia Chapter/Organizations in the US – AHF, Inc. ·        FamOhio - FamOhio ·        Hemophilia Treatment Centers/ U.S. -AHF, Inc. and NHF US GOVERNMENT RESOURCE LINKS   ·        Food and Drug Administration - FDA ·        Centers for Disease Control & Prevention - Hemophilia – CDC ·        Government site for general health information - Healthfinder ·        FDA Center for Evaluation of Biological Resources - FDA ·        Medicare/Medicaid/Child Health - Health Care Financing Admin ·        National Institutes of Health - NIH ·        National Heart, Lung, and Blood Institute - NHLBI ·        National Institute of Allergy and Infectious Diseases - NIAID ·        National Institute of Child and Human Development - NICHD ·        National Center for Biotechnology Information - NCBI ·        National Center for Infectious Diseases NCID ·        National Center for Biotechnology Information - NCBI ·        U.S. Department of Health and Human Services - HHS ·        National Institutes of Health Office of Rare Diseases - ORD ·        National Institutes of Health - Clinical Trials - Clinical Trials ·        US House of Representatives and the US Senate ·        Write your senators and congressional representatives - http://www.lib.umich.edu/libhome/Documents.center/congress/hou01.txt   PUBLICATIONS AND INFORMATION SERVICES LINKS   ·        Journal of Amer. Soc. of Hematology - Blood Weekly ·        HIV/AIDS Information Center - THE BODY ·        CDC Morbidity and Mortality Weekly Report (MMWR) ·        National Prevention Information Network – CDC NPIN ·        Mad Cow Disease - Mad Cow Disease Home Page ·        Health on the Net - HON Foundation ·        HANDI – The Information Center of NHF ·        Journal of the World Federation of Hemophilia - Haemophilia ·        Haemophilia Forum ·        Hepatitis Weekly ·        Journal of AIDS/HIV ·        Journal of the American Medical Association (JAMA) ·        The Lancet  .       National Library of Medicine - NLM ·        Emory University Library - MedWeb: Biomedical Resources ·        New England Journal of Medicine ·        Search engine for HIV/AIDS/blood related publications - NewsFile  ·        PEN (Parent's Exchange Newsletter) Newsletter - PEN ·        Wellness Interactive Network – Stay Healthy ·        Medical search engine indexing medical journals - WebMedLit   .        Bleeding Disorders Fact Sheets- Canadian Hemophilia Society .        Bleeding Disorders Information - World Federation of Hemophilia PHARMACEUTICAL COMPANY LINKS Aventis Behring 1020 First Avenue King of Prussia, PA 19406-1310 (800) 683-1288 - www.AventisBehring.com/na Baxter Healthcare 1425 Lake Cook Road MS LCI V-3 Deerfield, IL 60015 (800) 423-2090 - www.hemophiliagalaxy.com Bayer Corporation 400 Morgan Drive West Haven, CT (800) 288-8370 - www.bayer.com Genetics Institute 87 Cambridge Park Drive Cambridge, MA 02140 (888) 999-2349 - www.hemophiliavillage.com NovoNordisk Suite 200 100 College Rd. W Princeton, NJ 08540-6604 (800) 727-6500- www.novo.dk   Ipsen, Inc. 27 Maple Street Milford, MA 01757-3650 (800) 456-7322 – www.hyate.com   Setting the Standard of Homecare for the Bleeding Disorders Community AHF®, Inc. does not prescribe medications or give medical recommendations to individuals. AHF does not endorse or refer any particular individual to a specific HTC or medical provider.  It is best to obtain medical recommendations from your physician and/or your HTC.